Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic
Objective: to understand the experience of grief that mothers experience when receiving the diagnosis of Autism Spectrum Disorder (ASD) in their child and whether the context of the COVID pandemic affects this experience in some way. Methodology: qualitative phenomenological design. The participants...
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| Publicado en: | Revista Científica de Ciencias de la Salud |
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| Autores principales: | , , |
| Formato: | Artículo de revista |
| Lenguaje: | español |
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Universidad Peruana Unión
2024
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| _version_ | 1881695100078129152 |
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| author | Echeverría Vásquez, Javiera Muñoz Zepeda, Natalia Cerda Aedo, Bárbara |
| author_browse | Cerda Aedo, Bárbara Echeverría Vásquez, Javiera Muñoz Zepeda, Natalia |
| author_facet | Echeverría Vásquez, Javiera Muñoz Zepeda, Natalia Cerda Aedo, Bárbara |
| author_sort | Echeverría Vásquez, Javiera |
| collection | Revistas |
| container_title | Revista Científica de Ciencias de la Salud |
| description | Objective: to understand the experience of grief that mothers experience when receiving the diagnosis of Autism Spectrum Disorder (ASD) in their child and whether the context of the COVID pandemic affects this experience in some way. Methodology: qualitative phenomenological design. The participants in this research were three mothers of children diagnosed with ASD. The strategy that was used to produce the data to be analyzed was the semi-structured interview, which was analyzed and coded. Results: for two of the three mothers interviewed, ASD did not mean an illness or a disability, but a condition and a way of life; being something they would not change in their children. In contrast, mother three does perceive it as an illness. Conclusion: it was possible to conclude that the arrival of a child with ASD, as well as any other condition that escapes the idea of what is understood as normal, constitutes a mourning for the dreams, hopes and expectations that arise along with the wait of a child and who are frustrated by the diagnosis. |
| format | Online |
| id | oai:rccs.upeu.edu.pe:article/2099 |
| institution | UPeU |
| issn | 2411-0094 2306-0603 |
| language | Spanish |
| publishDate | 2024 |
| publishDateRange | 2024 |
| publishDateSort | 2024 |
| publisher | Universidad Peruana Unión |
| publisherStr | Universidad Peruana Unión |
| record_format | ojs |
| revista_str_mv | Revista Científica de Ciencias de la Salud |
| spelling | oai:rccs.upeu.edu.pe:article/20992024-12-24T02:56:56Z Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic Experiencia del duelo y su impacto en madres con hijos diagnosticados con trastorno del Espectro Autista en situación de pandemia Echeverría Vásquez, Javiera Muñoz Zepeda, Natalia Cerda Aedo, Bárbara Grief Autism Pandemic Duelo Autismo Pandemia Objective: to understand the experience of grief that mothers experience when receiving the diagnosis of Autism Spectrum Disorder (ASD) in their child and whether the context of the COVID pandemic affects this experience in some way. Methodology: qualitative phenomenological design. The participants in this research were three mothers of children diagnosed with ASD. The strategy that was used to produce the data to be analyzed was the semi-structured interview, which was analyzed and coded. Results: for two of the three mothers interviewed, ASD did not mean an illness or a disability, but a condition and a way of life; being something they would not change in their children. In contrast, mother three does perceive it as an illness. Conclusion: it was possible to conclude that the arrival of a child with ASD, as well as any other condition that escapes the idea of what is understood as normal, constitutes a mourning for the dreams, hopes and expectations that arise along with the wait of a child and who are frustrated by the diagnosis. Objetivo: conocer la experiencia de duelo que viven las madres al recibir el diagnóstico de Trastorno del Espectro Autista (TEA) en su hijo y si el contexto de pandemia por COVID afecta de alguna manera esta experiencia. Metodología: diseño cualitativo fenomenológico. Los participantes de esta investigación fueron tres madres de hijos diagnosticados con TEA. La estrategia que se ocupó para producir los datos a analizar fue la entrevista semiestructurada, que se analizaron y codificaron. Resultados: para dos de las tres madres entrevistadas el TEA no significó una enfermedad ni una discapacidad, sino una condición y una forma de vida; siendo algo que no cambiarían en sus hijos. En contraposición, la madre tres sí lo percibe como una enfermedad. Conclusión: se pudo concluir que la llegada de un hijo con TEA, así como con cualquier otra condición que escape a la idea de lo que se entiende por normal, constituye un duelo por los sueños, ilusiones y expectativas que se gestan junto a la espera de un hijo y que se ven frustradas ante el diagnóstico. Universidad Peruana Unión 2024-12-24 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/2099 10.17162/rccs.v17i2.2099 Revista Científica de Ciencias de la Salud; Vol. 17 No. 2 (2024): Revista Científica de Ciencias de la Salud; 20 - 31 Revista Científica de Ciencias de la Salud; Vol. 17 Núm. 2 (2024): Revista Científica de Ciencias de la Salud; 20 - 31 2411-0094 2306-0603 spa https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/2099/2161 Derechos de autor 2024 Javiera Echeverría Vásquez, Natalia Muñoz Zepeda, Bárbara Cerda Aedo https://creativecommons.org/licenses/by/4.0/ |
| spellingShingle | Grief Autism Pandemic Duelo Autismo Pandemia Echeverría Vásquez, Javiera Muñoz Zepeda, Natalia Cerda Aedo, Bárbara Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic |
| title | Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic |
| title_alt | Experiencia del duelo y su impacto en madres con hijos diagnosticados con trastorno del Espectro Autista en situación de pandemia |
| title_full | Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic |
| title_fullStr | Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic |
| title_full_unstemmed | Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic |
| title_short | Grief experience and its impact on mothers of children diagnosed with Autism Spectrum Disorder during the pandemic |
| title_sort | grief experience and its impact on mothers of children diagnosed with autism spectrum disorder during the pandemic |
| topic | Grief Autism Pandemic Duelo Autismo Pandemia |
| topic_facet | Grief Autism Pandemic Duelo Autismo Pandemia |
| url | https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/2099 |
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