Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care
Objective: establish the needs of family caregivers of people with orphan diseases considering the Adventist Nursing Model. Methodology: Literature review covering quantitative and qualitative articles found in databases and journals indexed in Spanish, English and Portuguese languages, between 2014...
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| Publicado en: | Revista Científica de Ciencias de la Salud |
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| Autores principales: | , , |
| Formato: | Artículo de revista |
| Lenguaje: | español |
| Publicado: |
Universidad Peruana Unión
2020
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| Acceso en línea: | Ver en el sistema de origen |
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| _version_ | 1881695092573470720 |
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| author | Martínez Reyes, Cielo Oviedo López, Lizeth Polo Aragón, Beatriz Eliana |
| author_browse | Martínez Reyes, Cielo Oviedo López, Lizeth Polo Aragón, Beatriz Eliana |
| author_facet | Martínez Reyes, Cielo Oviedo López, Lizeth Polo Aragón, Beatriz Eliana |
| author_sort | Martínez Reyes, Cielo |
| collection | Revistas |
| container_title | Revista Científica de Ciencias de la Salud |
| description | Objective: establish the needs of family caregivers of people with orphan diseases considering the Adventist Nursing Model. Methodology: Literature review covering quantitative and qualitative articles found in databases and journals indexed in Spanish, English and Portuguese languages, between 2014 and 2019, whose methodological rigor met STROBE, COREQ, PRISMA, and JADAD criteria. The information obtained was related to the Adventist Nursing Model, NOC, and NIC. Results: 28 articles were selected that analyzed physical, psychological, social, educational, spiritual, health care and economic needs in caregivers of people with orphan diseases, which required multidisciplinary and integral support, including nurse spiritual support through interventions proposed by the NIC, and the Adventist Nursing model (care, connection with God and the other, and empowerment of the caregiver in their own health). Conclusion: the needs of caregivers cover different areas of being, which can be approached independently and interdependently, identified by theoretical models. |
| format | Online |
| id | oai:rccs.upeu.edu.pe:article/1341 |
| institution | UPeU |
| issn | 2411-0094 2306-0603 |
| language | Spanish |
| publishDate | 2020 |
| publishDateRange | 2020 |
| publishDateSort | 2020 |
| publisher | Universidad Peruana Unión |
| publisherStr | Universidad Peruana Unión |
| record_format | ojs |
| revista_str_mv | Revista Científica de Ciencias de la Salud |
| spelling | oai:rccs.upeu.edu.pe:article/13412021-01-05T07:04:09Z Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care Necesidades de cuidadores familiares de personas con enfermedades huérfanas: cerrando brechas a través del cuidado enfermero Martínez Reyes, Cielo Oviedo López, Lizeth Polo Aragón, Beatriz Eliana Caregivers, Rare Diseases, Nursing Care, Needs Assessment, Theoretical Model. Cuidadores, Enfermedades Raras, Cuidado de Enfermería, Evaluación de Necesidades, Modelo Teórico. Objective: establish the needs of family caregivers of people with orphan diseases considering the Adventist Nursing Model. Methodology: Literature review covering quantitative and qualitative articles found in databases and journals indexed in Spanish, English and Portuguese languages, between 2014 and 2019, whose methodological rigor met STROBE, COREQ, PRISMA, and JADAD criteria. The information obtained was related to the Adventist Nursing Model, NOC, and NIC. Results: 28 articles were selected that analyzed physical, psychological, social, educational, spiritual, health care and economic needs in caregivers of people with orphan diseases, which required multidisciplinary and integral support, including nurse spiritual support through interventions proposed by the NIC, and the Adventist Nursing model (care, connection with God and the other, and empowerment of the caregiver in their own health). Conclusion: the needs of caregivers cover different areas of being, which can be approached independently and interdependently, identified by theoretical models. Objetivo: establecer las necesidades de los cuidadores familiares de personas con enfermedades huérfanas teniendo en cuenta el Modelo de la Enfermería Adventista. Metodología: revisión de literatura que abarcó artículos cuantitativos y cualitativos hallados en bases de datos y revistas indexadas en idiomas español, inglés y portugués, entre los años 2014 y 2019, cuyo rigor metodológico cumplieran criterios STROBE, COREQ, PRISMA y JADAD. La información obtenida fue relacionada con el modelo de la Enfermería Adventista, NOC y NIC. Resultados: Se seleccionaron 28 artículos que analizaban necesidades físicas, psicológicas, sociales, educativas, espirituales, sanitarias y económicas en los cuidadores de personas con enfermedades huérfanas, que requerían soporte multidisciplinar e integral, incluyendo apoyo espiritual enfermero mediante intervenciones propuestas por la NIC y el modelo de Enfermería Adventista (cuidado, conexión con Dios y el otro, y empoderamiento del cuidador en su propia salud). Conclusión: Las necesidades de los cuidadores abarcan diferentes áreas del ser, que pueden ser abordadas con intervenciones independientes e interdependientes, identificadas mediante modelos teóricos. Universidad Peruana Unión 2020-06-01 info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion application/pdf text/html https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/1341 10.17162/rccs.v13i1.1341 Revista Científica de Ciencias de la Salud; Vol. 13 No. 1 (2020): Revista Científica de Ciencias de la Salud; 9 - 23 Revista Científica de Ciencias de la Salud; Vol. 13 Núm. 1 (2020): Revista Científica de Ciencias de la Salud; 9 - 23 2411-0094 2306-0603 10.17162/rccs.v13i1 spa https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/1341/1682 https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/1341/1790 |
| spellingShingle | Caregivers, Rare Diseases, Nursing Care, Needs Assessment, Theoretical Model. Cuidadores, Enfermedades Raras, Cuidado de Enfermería, Evaluación de Necesidades, Modelo Teórico. Martínez Reyes, Cielo Oviedo López, Lizeth Polo Aragón, Beatriz Eliana Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care |
| title | Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care |
| title_alt | Necesidades de cuidadores familiares de personas con enfermedades huérfanas: cerrando brechas a través del cuidado enfermero |
| title_full | Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care |
| title_fullStr | Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care |
| title_full_unstemmed | Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care |
| title_short | Family caregivers’ needs of people with orphan diseases: closing arrows through nursing care |
| title_sort | family caregivers needs of people with orphan diseases closing arrows through nursing care |
| topic | Caregivers, Rare Diseases, Nursing Care, Needs Assessment, Theoretical Model. Cuidadores, Enfermedades Raras, Cuidado de Enfermería, Evaluación de Necesidades, Modelo Teórico. |
| topic_facet | Caregivers, Rare Diseases, Nursing Care, Needs Assessment, Theoretical Model. Cuidadores, Enfermedades Raras, Cuidado de Enfermería, Evaluación de Necesidades, Modelo Teórico. |
| url | https://rccs.upeu.edu.pe/index.php/rc_salud/article/view/1341 |
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