A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean

Background: Palliative care (PC) is essential to improve quality of life for individuals with life-limiting acute neurological conditions, particularly in resource-limited settings. In Latin America and the Caribbean (LAC), there is limited health care professional training and education on PC. Obje...

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Autores principales: Monica M. Diaz, Lesley A. Guareña, Bettsie Garcia, Christoper A. Alarcón-Ruiz, Stella Seal, Clio Rubiños, Dulce M. Cruz‐Oliver, J. Ricardo Carhuapoma
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Publicado: 2024
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author Monica M. Diaz
Lesley A. Guareña
Bettsie Garcia
Christoper A. Alarcón-Ruiz
Stella Seal
Clio Rubiños
Dulce M. Cruz‐Oliver
J. Ricardo Carhuapoma
author_browse Bettsie Garcia
Christoper A. Alarcón-Ruiz
Clio Rubiños
Dulce M. Cruz‐Oliver
J. Ricardo Carhuapoma
Lesley A. Guareña
Monica M. Diaz
Stella Seal
author_facet Monica M. Diaz
Lesley A. Guareña
Bettsie Garcia
Christoper A. Alarcón-Ruiz
Stella Seal
Clio Rubiños
Dulce M. Cruz‐Oliver
J. Ricardo Carhuapoma
author_sort Monica M. Diaz
collection Producción científica
description Background: Palliative care (PC) is essential to improve quality of life for individuals with life-limiting acute neurological conditions, particularly in resource-limited settings. In Latin America and the Caribbean (LAC), there is limited health care professional training and education on PC. Objective: We reviewed the peer-reviewed literature discussing end-of-life care, withdrawal of life-sustaining treatments (WOLST), and PC in the acute inpatient setting. Methods: We searched 10 databases, including peer-reviewed published conference abstracts and articles published until May 22, 2024, and included literature describing goals-of-care discussions or availability of PC services in an inpatient setting in LAC countries. Results: We identified 34 articles that highlighted end-of-life discussions, WOLST, and PC utilization in inpatient settings in LAC. We identified several themes across literature as follows: limitations to PC referrals, hospice/end-of-life care, and the role of advanced directives in LAC. Our review found that several articles highlight the limitations of PC usage in LAC and inadequate access to treatments, including gastrostomy and tracheostomy tube placement. Conclusions: Our review demonstrates a need to improve PC knowledge and access to end-of-life care resources. Regional educational efforts are needed to improve PC knowledge among health care providers who care for patients with acute neurological conditions in LAC.
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spelling oai:cris.upeu.edu.pe:20.500.15037/11732026-10-30T16:15:18ZA Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the CaribbeanMonica M. DiazLesley A. GuareñaBettsie GarciaChristoper A. Alarcón-RuizStella SealClio RubiñosDulce M. Cruz‐OliverJ. Ricardo CarhuapomaPalliative careLatin AmericansMedicineEnd-of-life careNursingGerontologyFamily medicinePolitical scienceLawPalliative careLatin AmericansMedicineEnd-of-life careNursingGerontologyFamily medicinePolitical scienceAdultAdultAdultAdultAdultAdultAdultAgedAgedAgedAgedAgedAgedAgedAged, 80 and overAged, 80 and overAged, 80 and overAged, 80 and overAged, 80 and overAged, 80 and overAged, 80 and overCritical CareCritical CareCritical CareCritical CareCritical CareCritical CareCritical CareFemaleFemaleFemaleFemaleFemaleFemaleFemaleHumansHumansHumansHumansHumansHumansHumansLatin AmericaLatin AmericaLatin AmericaLatin AmericaLatin AmericaLatin AmericaLatin AmericaMaleMaleMaleMaleMaleMaleMaleMiddle AgedMiddle AgedMiddle AgedMiddle AgedMiddle AgedMiddle AgedMiddle AgedNervous System Diseases therapyNervous System Diseases therapyNervous System Diseases therapyNervous System Diseases therapyNervous System Diseases therapyNervous System Diseases therapyNervous System Diseases therapyPalliative CarePalliative CarePalliative CarePalliative CarePalliative CarePalliative CarePalliative CareTerminal CareTerminal CareTerminal CareTerminal CareTerminal CareTerminal CareTerminal CareCaribbean RegionCaribbean RegionCaribbean RegionCaribbean RegionCaribbean RegionCaribbean RegionCaribbean RegionHealth Sciences Medicine Public Health, Environmental and Occupational Health Palliative Care and End-of-Life IssuesSocial Sciences Psychology Clinical Psychology Healthcare Decision-Making and RestraintsHealth Sciences Health Professions Radiological and Ultrasound Technology Family and Patient Care in Intensive Care UnitsBackground: Palliative care (PC) is essential to improve quality of life for individuals with life-limiting acute neurological conditions, particularly in resource-limited settings. In Latin America and the Caribbean (LAC), there is limited health care professional training and education on PC. Objective: We reviewed the peer-reviewed literature discussing end-of-life care, withdrawal of life-sustaining treatments (WOLST), and PC in the acute inpatient setting. Methods: We searched 10 databases, including peer-reviewed published conference abstracts and articles published until May 22, 2024, and included literature describing goals-of-care discussions or availability of PC services in an inpatient setting in LAC countries. Results: We identified 34 articles that highlighted end-of-life discussions, WOLST, and PC utilization in inpatient settings in LAC. We identified several themes across literature as follows: limitations to PC referrals, hospice/end-of-life care, and the role of advanced directives in LAC. Our review found that several articles highlight the limitations of PC usage in LAC and inadequate access to treatments, including gastrostomy and tracheostomy tube placement. Conclusions: Our review demonstrates a need to improve PC knowledge and access to end-of-life care resources. Regional educational efforts are needed to improve PC knowledge among health care providers who care for patients with acute neurological conditions in LAC.Otherhttps://pubmed.ncbi.nlm.nih.gov/3964883710.1089/jpm.2024.0304https://hdl.handle.net/20.500.15037/1173W4405203078enJournal of Palliative Medicine1096-62181557-77402024-12-092026-06-13T09:48:41Z2026-06-13T09:48:41Z
spellingShingle Palliative care
Latin Americans
Medicine
End-of-life care
Nursing
Gerontology
Family medicine
Political science
Law
Palliative care
Latin Americans
Medicine
End-of-life care
Nursing
Gerontology
Family medicine
Political science
Adult
Adult
Adult
Adult
Adult
Adult
Adult
Aged
Aged
Aged
Aged
Aged
Aged
Aged
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Female
Female
Female
Female
Female
Female
Female
Humans
Humans
Humans
Humans
Humans
Humans
Humans
Latin America
Latin America
Latin America
Latin America
Latin America
Latin America
Latin America
Male
Male
Male
Male
Male
Male
Male
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Health Sciences Medicine Public Health, Environmental and Occupational Health Palliative Care and End-of-Life Issues
Social Sciences Psychology Clinical Psychology Healthcare Decision-Making and Restraints
Health Sciences Health Professions Radiological and Ultrasound Technology Family and Patient Care in Intensive Care Units
Monica M. Diaz
Lesley A. Guareña
Bettsie Garcia
Christoper A. Alarcón-Ruiz
Stella Seal
Clio Rubiños
Dulce M. Cruz‐Oliver
J. Ricardo Carhuapoma
A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean
title A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean
title_full A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean
title_fullStr A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean
title_full_unstemmed A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean
title_short A Scoping Review of End-of-Life Discussions and Palliative Care: Implications for Neurological Intensive Care in Latin America and the Caribbean
title_sort scoping review of end of life discussions and palliative care implications for neurological intensive care in latin america and the caribbean
topic Palliative care
Latin Americans
Medicine
End-of-life care
Nursing
Gerontology
Family medicine
Political science
Law
Palliative care
Latin Americans
Medicine
End-of-life care
Nursing
Gerontology
Family medicine
Political science
Adult
Adult
Adult
Adult
Adult
Adult
Adult
Aged
Aged
Aged
Aged
Aged
Aged
Aged
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Female
Female
Female
Female
Female
Female
Female
Humans
Humans
Humans
Humans
Humans
Humans
Humans
Latin America
Latin America
Latin America
Latin America
Latin America
Latin America
Latin America
Male
Male
Male
Male
Male
Male
Male
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Health Sciences Medicine Public Health, Environmental and Occupational Health Palliative Care and End-of-Life Issues
Social Sciences Psychology Clinical Psychology Healthcare Decision-Making and Restraints
Health Sciences Health Professions Radiological and Ultrasound Technology Family and Patient Care in Intensive Care Units
topic_facet Palliative care
Latin Americans
Medicine
End-of-life care
Nursing
Gerontology
Family medicine
Political science
Law
Palliative care
Latin Americans
Medicine
End-of-life care
Nursing
Gerontology
Family medicine
Political science
Adult
Adult
Adult
Adult
Adult
Adult
Adult
Aged
Aged
Aged
Aged
Aged
Aged
Aged
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Aged, 80 and over
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Critical Care
Female
Female
Female
Female
Female
Female
Female
Humans
Humans
Humans
Humans
Humans
Humans
Humans
Latin America
Latin America
Latin America
Latin America
Latin America
Latin America
Latin America
Male
Male
Male
Male
Male
Male
Male
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Middle Aged
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Nervous System Diseases therapy
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Palliative Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Terminal Care
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Caribbean Region
Health Sciences Medicine Public Health, Environmental and Occupational Health Palliative Care and End-of-Life Issues
Social Sciences Psychology Clinical Psychology Healthcare Decision-Making and Restraints
Health Sciences Health Professions Radiological and Ultrasound Technology Family and Patient Care in Intensive Care Units
url https://pubmed.ncbi.nlm.nih.gov/39648837
https://hdl.handle.net/20.500.15037/1173
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